Region 4 | Educational Presentation & Dinner - Overview of Daybue (trofinetide)

TOPIC/TITLE:
Overview of Daybue presented by Acadia Pharmaceuticals

PRESENTER:
Edward Dabrowski, MD | Division Chief, Pediatric Physical Medicine and Rehabilitation, Beaumont Health (Grosse Pointe, MI)

WHERE:

• Review Rett Syndrome diagnostic criteria, characteristics, and potential caregiver impact
• Explore DAYBUE clinical trial design, efficacy, and safety data from the pivotal trial, LAVENDER(TM), and results from the long-term open-label extension trials, LILAC-1(TM) and LILAC-2(TM). 
• Review management strategies for gastrointestinal adverse events.
• Summarize the interim data from the post-approval, observational, ongoing real-world study LOTUS
• Gain insights from patients' experience with RTT and DAYBUE

WHERE:
Puerta Del Sol
187 Monroe Ave NE, 27th Floor
Grand Rapids, MI 49503

WHEN:
Tuesday, August 25, 2026
6:00 pm ET

RSVP: